How do you describe how badly something hurt you?
How do you put into words something that didn’t just wound you, but rearranged your life and your body from the inside out?
I’ve tried, over and over, to describe what benzodiazepine withdrawal does to a human being. I can give people pieces of it. I can give outlines. But the full weight of it? That resists language.
Try to imagine this… everything you believed about yourself, your strength, your stability, your sense of being “you” is ripped away, not by trauma from outside, but by something happening inside your own nervous system. Now imagine that happening while your physical health begins to unravel at the same time. Blood work that was once normal is suddenly abnormal. Diabetes that was under control is no longer stable. Your heart develops rhythm disturbances. Blood test markers light up as if you have a raging infection, even though there is none, because your body is under so much stress it believes it is being attacked.
For me, this isn’t imagination. This is what I lived through. And what I am still healing from.
If I had truly known what withdrawal was going to do to me, I don’t think I would have chosen this path. But once I reached a certain point, there was no safe way back. There was only forward. That is the brutal truth of benzodiazepine withdrawal. At some point, it becomes a matter of survival, not choice.
In my support group, one man did not survive. It became too much for him. I hope he has found the peace that he could not find in life. Several others had to go back on the drug because their bodies simply could not withstand the withdrawal. I don’t see them as weak. I tried many times myself before I was finally able to keep going. No one who has not lived inside this understands how narrow the path can become.
Even my own doctor did not think I would successfully get off this drug. I did, but at a steep cost. In three days, I will be one year free from benzodiazepines, and I am still dealing with what they did to my nervous system, my heart, and my body as a whole.
This experience is not the same as my past alcoholism. That may surprise some people, but it’s true. When I was drinking, I was making destructive choices, terrible ones, and alcohol made it easier to keep making them. With benzodiazepines, I was never in control of what was happening to my body or brain. I was never warned of the risks. I was never told that stopping could be dangerous or even deadly. You cannot simply “quit” benzodiazepines. Abrupt discontinuation or rapid tapering can cause seizures, heart rhythm disturbances, psychosis, and death. I personally experienced seizures during withdrawal.
Today I live with what is called Benzodiazepine-Induced Neurological Dysfunction and autonomic nervous system disruption. No one can tell me how long this will last, only that it can take years. “Long-term use” is often defined as more than two to four weeks. I was on these drugs for over twenty years.
To anyone reading this who is still taking benzodiazepines or who is in withdrawal… I am not trying to frighten you. But I will not lie to you. Too many people have been harmed by silence and minimization. If you want to understand how severe this can be, even for highly trained physicians, you can read the story of a cardiologist who went through this herself here.
So how do I live now?
I take life one day at a time. I don’t plan far into the future yet. My nervous system is still learning what safety feels like. I anchor myself in my family. In love. In simple moments. I pray. I meditate. I savor beauty. These aren’t small things. This is how I build a life after what I have endured.
And I will keep telling this story.
Not because I want to dwell in suffering or some such nonsense, but because too many people are being placed on these drugs without informed consent, and too many are being abandoned when they try to come off them. I am here. Others are not. And if my voice can help even one person feel less alone, or one doctor think twice, or one family understand what their loved one is going through, then this pain will not have been meaningless.
I have walked through the fire to get here.
I survived.
And as long as I am here, I will speak.
Amituofo
~Buck









